All posts related to "arthritis"

JointHealth™ insight – The JointHealth™ Arthritis Medications Report Card and Medications Guide Edition

Arthritis Consumer Experts’ 10th Annual Arthritis Medications Report Card and Medications Guide: The changing landscapes of reimbursement for arthritis medications in Canada

JointHealth™ insight banner on Arthritis Medications Report Card and Medications GuideArthritis Consumer Experts (ACE) has released its 10th Annual JointHealth™ Arthritis Medications Report Card and Medications Guide – the reliable, quick reference tool to help you evaluate where your province ranks in terms of providing reimbursement for medications to treat inflammatory forms of arthritis.

Commenting on the changing landscape for reimbursement of arthritis medications, ACE President, Cheryl Koehn stated: “Any new pharmaceutical policy that promises to deliver significant drug plan savings must do so without compromising patient safety and efficacy. ACE has also consistently advocated that any drug plan cost savings related to changes in policy that affect arthritis medication reimbursement access should be reinvested back to drug formulary budgets to support the listing of new arthritis medicines and other non-medication related initiatives to improve models of arthritis care such as creating rheumatology nursing billing codes.”

The JointHealth™ Arthritis Medications Report Card and Medications Guide gives you information on the most commonly prescribed medications for inflammatory types of arthritis, such as rheumatoid arthritis, axial spondyloarthritis, psoriatic arthritis or juvenile idiopathic arthritis.

In this JointHealth™ insight, topics covered include:

  • The changing landscapes of reimbursement for arthritis medications in Canada
  • The federal health department consultation on medication pricing regulations
  • The essential drugs program initiative in British Columbia
  • The Children and Youth Pharmacare plan in Ontario
  • Medication policies and politics in Canada

About the Report Card
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The Big Sick film highlights writer’s real-life battle with adult-onset Still’s disease

The Big Sick film highlights writer’s real-life battle with adult-onset Still’s disease. The Big Sick film is based on the real-life courtship between Silicon Valley actor Kumail Nanjiani and his wife, writer Emily V. Gordon. In the movie, Zoe Kazan portrays Gordon onscreen, and Holly Hunter and Ray Romano play her parents.

The Big Sick film cast will cast light on adult-onset Still's disease

The romantic dramedy portrays how the married co-writers dealt with the extremely rare form of arthritis that brought them together 10 years ago. Back then, Gordon was a therapist in Chicago and has been together with the then standup comedian Nanjiani. Gordon’s initial symptoms were similar to a cold. She thought she had a really bad cold or pneumonia. She fainted in the middle of getting an X-ray and was rushed to the emergency room.

Gordon was eventually diagnosed with adult-onset Still’s disease (AOSD), a rare form of arthritis that can shut down major organs if untreated. Adult Still’s disease is characterized by high fevers, inflammation of the joints, and a salmon-coloured rash on the skin. It can either be chronic or episodic (having flare-ups a few times a year). In children, this disease is known as systemic onset juvenile rheumatoid arthritis; when it occurs in people over age 15, it is known as adult Still’s disease. In Gordon’s case, AOSD affected her lungs, causing water to accumulate in her lungs. As a result, she had trouble breathing. Continue reading

On June 25, run for kids with arthritis and their families!

Join Cassie and Friends for their Scotiabank 5K & Half Marathon Team to raise money for all the kids affected by juvenile arthritis and other rheumatic diseases in BC.

Cassie and Friends Team for Scotiabank 5k for kidsOver the last 10 years, Team Cassie and Friends has laid it all on the course for kids with arthritis. Their team of 100 runners and walkers, from toddlers to grandparents, have transformed the lives of kids and families diagnosed with Juvenile Arthritis and other rheumatic diseases in BC and across Canada.

But, there is still so much more we can do to support and connect families, fund critical research and raise awareness – we hope you’ll join Cassie and Friends! Make a gift or sign up to be a part of their team. Cassie and Friends has created a virtual run for those who are unable to attend the Vancouver event.

Click here to register. Please use charity pin codes (all child registrations will be reimbursed): 5K -17CFS5K or Half Marathon– 17CFS21K

If you have any questions, please feel free to contact Jennifer Wilson at jennifer@cassieandfriends.ca or visit cassieandfriendsrun.ca or David Porte at david@porte.ca

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Do you know a volunteer with arthritis who deserves recognition?

The Qualman-Davies Arthritis Consumer Community Leadership Award

Banner for Qualman-Davies Award for volunteer with arthritis

 

Do you know a person with arthritis who has, or is, providing leadership in the community and deserves recognition for their valuable volunteer work? We encourage you to help us celebrate their contributions by nominating them for the Qualman-Davies Arthritis Consumer Community Leadership Award.

The Qualman-Davies Arthritis Consumer Community Leadership Award was created in 2014 to recognize one person’s contributions to helping Canadians living with the disease to be heard in decision-making processes that affect millions. That’s what Ann Qualman and Jim Davies did as early pioneers in arthritis advocacy in Canada. Their tireless and selfless efforts helped millions of Canadians.

Nomination process:

To submit a nomination, please follow the four steps listed below.

  1. Obtain the prospective nominee’s consent to be nominated prior to submitting this form.
  2. Click here for the nomination form. If you create a separate nomination document, please use the headings provided on the Nomination Form PDF for ease of review by the award adjudication committee.
  3. Provide the completed nomination form to the nominee for their review for accuracy and obtain their signature on the document.
  4. Submit the form to feedback@jointhealth.org

The application deadline is August 31, 2017. Each submission will be reviewed by the award adjudication committee and scored on a points system. The winner and their nominator will be notified by the adjudication committee chair by September 8, 2017. The award will be bestowed in person at the Arthritis Alliance of Canada’s Annual Conference Gala, this year taking place on October 26, 2017 in Vancouver, British Columbia (award recipient’s expenses will be covered).

About Ann Qualman and Jim Davies Continue reading

An important arthritis read before you vote

The BC provincial election is on May 9, 2017 – Vote for arthritis!

BC Election - Vote forArthritis Consumer Experts (ACE) asked British Columbia’s political parties, leaders and candidates to share their views on how to improve arthritis prevention, treatment and care.

Arthritis affects 1 in 5 British Columbia residents and is the leading cause of disability in the province. The economic burden of arthritis is expected to double within a generation and strain the BC health system’s ability to provide quality care to BC patients with arthritis.

ACE sent an open letter and survey to all candidates and political parties running in the upcoming May 9th British Columbia provincial election. ACE has received party responses from the BC Liberal Party, BC NDP, BC Green Party, BC Citizens First Party and the BC New Republican Party to questions regarding models of care, osteoarthritis education, aboriginal arthritis care, reimbursement for inflammatory arthritis medications and flexible work arrangements. To view a political party’s response, click on the links below.

To view all candidate and party responses, please visit ACE’s BC Election 2017 page and please vote on May 9th. We encourage you to:

  • Circulate this survey and candidate responses to friends, family, healthcare professionals, and your local media.
  • Reach out to your candidates; here are tips on how to communicate with your electoral candidates, please visit our “Taking Action” page and click on “What You Can Do“.

Canadian Obesity Network publishes first-ever Report Card On Access to Obesity Treatment

Canadian Obesity Network publishes first-ever Report Card On Access to Obesity Treatment For Adults in Canada 2017

A paradigm shift in the prevention and treatment of obesity.

Report Card on Obesity Treatment Cover PhotoThe report is a shift away from considering obesity to be merely the result of poor lifestyle choices toward a socio-ecological model of health that carries with it an obligation to our health systems and society to prevent and treat it as we do other chronic diseases.

Understanding your Body Mass Index (BMI)
Health Canada’s Canadian Guidelines for Body Weight Classification in Adults uses the Body Mass Index (BMI) to determine if someone is overweight. You can calculate your BMI using the formula below or online here:

BMI = weight (kg)/height (m)2

Health Canada’s Health Risk Classification According to Body Mass Index (BMI) table shows the correlation between your BMI score and your risk of developing health problems, such as type 2 diabetes, high blood pressure, heart disease, stroke, arthritis and cancer. Please note other factors may influence your BMI. You should consult your family physician if you are concerned about being overweight.
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