A recent research by Dr. Mary Bell of Sunnybrook Health Sciences Centre showed that a peer support program can help people living with early inflammatory arthritis (EIA). The peer-to-peer program works by pairing a newly diagnosed person with someone who has been living with and managing their arthritis for several years.
Peer mentors of Sunnybrook
Dr. Bell conducted the research with researchers and two patients – also known as ‘consumers’ - Dawn Richards, PhD from the Canadian Arthritis Network’s Consumer Advisory Council, and Jennifer Boyle PhD. Dr. Bell and her team developed an intervention model by conducting an intensive literature review of scholarly journals and publications. The intervention model was tested on nine EIA patients who were paired with a peer best matching their needs based on factors such as work and age status. Each pair met face-to-face or by phone once a week for 12 weeks. At the end of the study, both mentors and mentees demonstrated improvements in overall impact of arthritis on their life, coping efficacy and social support (effect size>0.3). Continue reading →
Important Health Canada endorsed advisory notice on Methotrexate Sodium Injections 25mg/mL (2mL)
Teva Canada Limited, in consultation with Health Canada, has initiated a voluntary recall of 3 lots of methotrexate sodium injection 25mg/mL (2mL) – DIN 02099705 – lots 12J30KK, 12J30KH, and 12J30KB. The 3 lot numbers listed above have a potential for cracks in the neck area of the glass container that could lead to a risk of infection if the medication is used.
If methotrexate sodium injection 25mg/mL is part of your treatment plan, please contact your doctor if you have any concerns. Please contact your doctor, pharmacy or hospital if you have purchased any methotrexate sodium injection 25mg/mL with the above lot numbers.
Every medication has risks and benefits. Always consider the risks of undertreated or untreated disease when thinking about making a change to your treatment plan. As with all aspects of your treatment plan, you should speak to your doctor if you have questions or concerns.
To read the full Health Canada advisory, please click here.
Aux membres, abonnés et visiteurs ACE et JointHealth
Pendant les préparatifs des célébrations du temps des Fêtes, les gens pensent collectivement aux façons d’aider les autres. C’est justement cet esprit qui nous anime, au comité ACE, pendant chacun des 365 jours de l’année et qui nous permet d’accomplir cette mission que nous nous sommes donnée, soit celle de faire don du savoir, d’apporter notre soutien et de travailler à la défense des intérêts de plus de 4,6 millions de Canadiennes et Canadiens atteints d’arthrite. En 2014, j’aimerais que tous et chacun puissent réfléchir à ce que nous pouvons partager ou offrir à la collectivité en échangeant des récits personnels, de l’information ou des morceaux de sagesse pouvant être diffusés sur le reseaudediffusionsurlarthrite.org. Lorsque vous décidez d’y aller de votre contribution, vous devenez membre de cette « famille » qui, d’un peu partout au pays et ailleurs dans le monde, a appris à travailler ensemble pour que ceux d’entre nous frappés par cette terrible maladie se sentent un peu mieux, soient plus heureux, fondent une famille, conservent leur emploi ou en décrochent un, afin que cette promesse de jours meilleurs sans arthrite se réalise.
Au comité ACE, l’équipe continuera à se mobiliser pour promouvoir le diagnostic précoce, améliorer l’accès aux options de meilleurs traitements, travailler au développement de stratégies pour vivre pleinement et demeurer actif physiquement et contribuer à améliorer les conditions de vie au quotidien des personnes atteintes d’une des 100 formes et plus d’arthrite qui existent aujourd’hui.
En ma qualité de personne atteinte de polyarthrite rhumatoïde, j’aimerais remercier tous mes collègues arthritiques pour leur force et leur courage qui non seulement tiennent tête à leur maladie, mais donnent également généreusement de leur temps, de leur énergie et de leurs efforts pour aider ceux qui vivent avec des personnes arthritiques ou qui travaillent ou défendent les personnes aux prises avec l’arthrite.
Je vous souhaite de Joyeuses Fêtes et des articulations en santé en 2014 !
Dear ACE and JointHealth members, subscribers and visitors,
As we prepare to celebrate during the holidays, people collectively think of how they can help others. That spirit guides all of us at ACE, 365 days a year, in our mission to share gifts of knowledge, support and advocacy for the more than 4.6 million Canadians living with arthritis. I’d like to ask all of you in 2014 to think of what you can share or “gift” our community by contributing stories, information or arthritis wisdom to arthritisbroadcastnetwork.org. When you do, you become part of a “family” across the country and around the world working together to help people who are stricken with arthritis, to get better. To be happier. To have families. To hold onto their job, or to get a job. To see the promise of a day without arthritis.
Our team at ACE will continue to call for the promotion of earlier diagnosis, the increased availability of improved treatment options, strategies on how to live a full life and to be physically active, to help improve daily living for those with one of the more than 100 types of arthritis that exist today.
As a person living with rheumatoid arthritis, I want to thank all of my arthritis peers for their strength and courage to persevere over their disease and to be so giving of their time, energy and effort to help others who live with, or work on behalf of, people with arthritis.
Wishing you all happy holidays and JointHealth in 2014!
From left to right: Peter Mitchell, Cheryl Koehn, Anita Chan, Kelly Lendvoy, Johanna Kendall, Daryl Fernquist
Last week was a fruitful week that ended with the Arthritis Consumer Experts’ (ACE) annual Christmas holiday staff luncheon. As some of the ACE team members work remotely from the office, it was great to meet everyone in person again at the office. Johanna, our Social Media and Program Director flew in all the way from Victoria, the beautiful capital city of British Columbia. Other ACE members made the morning trek from Mission, Langley and the North Shore.
The ACE team discussed our accomplishments over the year and shared exciting ideas to incorporate into our 2014 work plan. We look forward to launching the programs in 2014 and encourage you to sign up to become an ABN Insider – you will get ABN updates for the latest on the network, the arthritis community, Arthritis Consumer Experts’ programs, exclusive feature stories and more!
Arthritis Consumer Experts (ACE) and the Canadian Rheumatology Research Consortium (CRRC) have partnered to create a video, brochure and social media outreach program to help people with arthritis become more informed about clinical trials and to connect with the community. The program is called “Puzzled? Be the missing piece” and features the following:
A discussion between Cheryl Koehn, the Founder and President of ACE, and Dr. Ed Keystone, the Chairman of the CRRC.
A detailed brochure on clinical trials that can be found in CRRC member offices.
A social media platform committed to community and shared arthritis trials experiences.
A new Arthritis Broadcast Network channel devoted to the latest news and information about ground breaking arthritis research.
Find out how this partnership will benefit you and all Canadians in this issue of JointHealth™ monthly that features:
A look at the value of clinical trials in Canada.
An interview with Dawn Richards, a person living with rheumatoid arthritis who would say “yes” to clinical trials.
An interview with Linda Bennett, the Executive Director at the CRRC who discusses clinical trials from a researcher’s point-of-view.
Information about clinical trials.
Answers to your questions on whether to participate in a clinical trial.
A list of questions you can ask your doctor before you sign up for a clinical trial.
Help the ACE-CRRC partnership’s goal of providing information about clinical trials and their benefit to Canadians and of linking people living with arthritis to the broader research community—share this JointHealth™ monthly with your network.
Please tell us what future topics you would like to read about and what you think of this month’s issue of JointHealth™ monthly.