All posts related to "arthritis"

AS it Goes – Bridging the Patient-Doctor Divide

The doctor is listeningA checkup appointment at my rheumatologist (doctor who specializes in arthritis) always leads to some interesting discussions. Most of the time I try to “research” a topic beforehand, so that I am armed with the latest background information on whatever are my most pressing concerns at the time. When I launch into my questions (I always have a list written out), I have a better-than-even chance of holding a meaningful conversation with my rheumy. In turn, I get more out of the conversation instead of returning home with questions that even Google cannot answer. Understanding what he is really saying provides me with the sense that I am in control of my ankylosing spondylitis (AS), and not the other way around (AS controlling me?) Continue reading

CRA Interview Series 2015 – Linda Wilhelm on the Arthritis Patient Charter

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Linda Wilhelm on the Arthritis Patient Charter

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Linda Wilhelm

Picture of Linda

Linda Wilhelm is a mother, a grandmother, and an arthritis advocate who has lived with rheumatoid arthritis for over 30 years. Her advocacy work includes the following:

  • Atlantic Canada representative and Co-chair for the Consumer Advisory Council.
  • Operations committee member of the Best Medicines Coalition.
  • Frequent participation on Health Canada’s advisory panels and conferences on access and drug safety.
  • Two term member of The Expert Advisory Committee for Vigilance of Health Products.
  • Member of the Drug Safety and Effectiveness Network’s steering committee.
  • Active advocate for treatment access and quality of care both regionally and nationally.
  • Past board chair for the New Brunswick Division of The Arthritis Society.
  • President of the Canadian Arthritis Patient Alliance.

Continue reading

CRA Interview Series 2015 – Dr. Walter Maksymowych on spondyloarthritis

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Walter Maksymowych on spondyloarthritis

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Walter Maksymowych (from CaRE Arthritis)

Picture of Walter Maksymowych

Photo from CaRE Arthritis

Dr. Maksymowych is a rheumatologist at the University of Alberta. He is a Professor in the Department of Medicine, Division of Rheumatology at the University of Alberta. He is also a Medical Scientist of the Alberta Heritage Foundation for Medical Research, Outcome Measures in Rheumatology (OMERACT) steering committee member and Chair of the International OMERACT Soluble Biomarker Working Group, a member of the Canadian Arthritis Network Centres of Excellence, executive member of the Assessments of Spondyloarthritis International Society (ASAS), the Scientific Chair of the Alberta Rheumatoid Arthritis and Pharmacovigilance Program and Outcomes Research in Therapeutics (RAPPORT) committee, and a Principal Investigator and Executive Board member of the Spondyloarthritis Research Consortium of Canada (SPARCC). He is past-Chair of the Scientific Committee of the Canadian Rheumatology Association. Continue reading

CRA Interview Series 2015 – Ms. Anita Chan: Thoughts from ACE

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Ms. Anita Chan: Thoughts from Arthritis Consumer Experts (ACE)

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Ms. Anita Chan

Picture of Anita Anita is the Program Coordinator at ACE and iis responsible for research as part of the development and implementation of communications and public affair strategies. She plays a large role in media and social media outreach. She also coordinates special event plans and programs and is responsible for creative input into program design and implementation.

Continue reading

CRA Interview Series 2015 – Dr. Mary-Anne Fitzcharles: 101 on Joints for Joints

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Mary-Anne Fitzcharles: The 101 on Joints for Joints

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Mary-Anne Fitzcharles

Picture of Mary-Anne FitzcharlesDr. Fitzcharles is currently an associate professor of medicine in the Division of Rheumatology at McGill University. She completed her training in rheumatology at The London Hospital, Whitechapel, London, England. She received her medical education at the University of Cape Town, South Africa. She has been on the faculty at McGill University since 1984, and is a consultant rheumatologist at the McGill Pain Centre. Her past accomplishments include being an examiner for the Royal College of Physicians of Canada Internal Medicine Specialist Examinations for 15 years, a member of Medical Admissions committee for medical students to McGill University for 15 years, and director of postgraduate medical education at Royal Victoria Hospital, and member of postgraduate medical education board of McGill University. In the past 10 years, research interests have been in the area of pain management and alternative treatments use in rheumatic diseases, with a focus on rheumatoid arthritis and osteoarthritis.

About medicinal cannabis

Medical cannabis refers to the use of plant material, either whole or in extra form. Medical cannabis contains various cannabinoid molecules such as tetrahydrocannabinol (THC) and cannabidiol (CBD). THC has pain relieving and psychoactive (mind altering) properties. CBD is believed to reduce pain and inflammation without having psychoactive side effects.

JointHealth™ monthly – Celebrating arthritis research

February JHM coverCelebrating arthritis research

In this JointHealth™ monthly, we showcase research stories that demonstrate the value of collaboration between those who conduct research and those who use its results – consumers likes us, people living with arthritis.

  • What “window of opportunity” and “treat-to-target” mean in rheumatology.
  • The latest on what Canadian arthritis researchers are doing.
  • The 2014 Canadian Institute of Health Research (CIHR) Partnership Award: A partnership between public, private and patient groups.
  • A summary of Arthritis Consumer Experts’ participation at the Canadian Rheumatology Association’s 70th Annual Scientific Meeting.

Celebrating arthritis research 2000-2015

Turn back the clock 15 years ago when Arthritis Consumer Experts was founded, when new research began to suggest that osteoarthritis started attacking joints long before middle age, even before a person experienced symptoms of pain and inflammation. A paradigm shift in arthritis understanding was occurring and would deeply impact patients and their families, government and employers. Back in 2000, the world for people with arthritis was on the verge of dramatic transformation based on this new research and with the introduction of biologic therapy for inflammatory types of arthritis, like rheumatoid arthritis, a driver of indirect healthcare costs and a leading cause of work disability in Canada. Fast-forward to today and the scene looks much different. With well-trained Canadian researchers continuing to work and lead in collaboration with their counterparts around the world, the words “prevention” and “remission” are heard in rheumatology offices across the country. Pain is being reduced, quality of life is improving, and work disability is dropping in people with arthritis who would have done much worse had the knowledge from research not been utilized in their model of care.

This collection of stories highlights the significant impacts arthritis research can achieve. Although each is different, as a group, they exemplify the commitment of Canadian researchers to improving the health of Canadians living with arthritis……