Join the “virtual” race to increase pubic awareness of autoimmune arthritis
May 20 is World Autoimmune Arthritis Day. The International Foundation for Autoimmune Arthritis established this commemorative date back in 2012. The virtual event unites dozen of nonprofits, advocates, and experts from around the world to provide educational and awareness information to patients, their supporters, and the general public.
In the past, the event was organized as an online convention. This year, participants and partner organizations will participate in a virtual global race where they will visit social media and organizational websites, join live “detours” (webinars and web chats), and access community resource and raise awareness for autoimmune arthritis. During the Call to Action LIVE Awareness “Crowd Rallies” program, participants can join the Autoimmune Sing-a-Long Detour or submit a video contest on the topic of “raising your glass to raise awareness about autoimmune arthritis. Continue reading →
“It’s about good communication.” How often have we heard this wisdom when it comes to personal or professional situations? We have all experienced how a failure to communicate can derail a situation or relationship because our messages were misunderstood or misspoken. Continue reading →
Arthritis and Exercise Measures study: The University of Saskatchewan needs your help
Do you have arthritis? Participate for a chance to win a $50 pre-paid credit card
The University of Saskatchewan is conducting a study to understand what helps people exercise regularly. You will be asked to complete 2 online surveys, which will ask you about your arthritis and current exercise patterns. After completing both surveys, you will be entered into a draw for a chance to win a 1 of 2 $50 pre-paid credit cards.
You have been told by a healthcare person (e.g., doctor, physiotherapist) that you have arthritis
You have exercised for at least 15 minutes at least once in the past month (28 days)
You are 18 years of age or older
The first survey will take about 15-20 minutes to complete. The second follow-up survey will be emailed to you 2 weeks later and will take 5-10 minutes to complete. Any information collected during the study will be confidential. If you are interested in participating in this study, please follow this link: https://fluidsurveys.usask.ca/s/arthritis-phd-study-2/.
ACE asks Alberta’s political leaders to share their plan on how to improve arthritis prevention, treatment and care.
According to the Alberta Bone and Joint Health Institute, arthritis has devastating and debilitating effects on the lives of more than 500,000 Albertans. It is also the leading cause of work disability in Alberta, with nearly three out of every five people with arthritis of working age, costing Alberta’s economy $3.3 billion in direct and indirect costs.
Arthritis Consumer Experts sent an open letter and survey to all candidates in the upcoming May 5th Alberta provincial election, asking them how their Party plans to improve arthritis prevention, treatment and care.
Candidate responses can be viewed on our website. Click on Alberta Election 2015 where you will find responses categorized by party and arranged according to the date we receive them. Continue reading →
A checkup appointment at my rheumatologist (doctor who specializes in arthritis) always leads to some interesting discussions. Most of the time I try to “research” a topic beforehand, so that I am armed with the latest background information on whatever are my most pressing concerns at the time. When I launch into my questions (I always have a list written out), I have a better-than-even chance of holding a meaningful conversation with my rheumy. In turn, I get more out of the conversation instead of returning home with questions that even Google cannot answer. Understanding what he is really saying provides me with the sense that I am in control of my ankylosing spondylitis (AS), and not the other way around (AS controlling me?) Continue reading →
Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015
Today’s feature interview – Linda Wilhelm on the Arthritis Patient Charter
ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.
Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.
About Linda Wilhelm
Linda Wilhelm is a mother, a grandmother, and an arthritis advocate who has lived with rheumatoid arthritis for over 30 years. Her advocacy work includes the following:
Atlantic Canada representative and Co-chair for the Consumer Advisory Council.
Operations committee member of the Best Medicines Coalition.
Frequent participation on Health Canada’s advisory panels and conferences on access and drug safety.
Two term member of The Expert Advisory Committee for Vigilance of Health Products.
Member of the Drug Safety and Effectiveness Network’s steering committee.
Active advocate for treatment access and quality of care both regionally and nationally.
Past board chair for the New Brunswick Division of The Arthritis Society.
President of the Canadian Arthritis Patient Alliance.